Partial blockage event in both legs!
- Thread starter Systemlord
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Systemlord
Member
After 7 weeks on iron supplements I started getting allergic reactions to iron which caused rashes and hives, I'm trying to get it under control, I can only imagine what would happen if I were on TRT unable to take any form of iron, I would end up right back at critical iron deficiency.
I can't even eat spinach for two days in a row without breaking out in rashes, my body doesn't like iron right now.
Need suggestions for supplementing iron and ferritin?
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You are lucky and were able to go off TRT and your total T was 900ish and your free T was midrange. Most people go on TRT because they can't get total and free T numbers anywhere near as high as yours naturally. This results in all sorts of health, sex and quality of life problems. Most women have higher free T and total T than Systemlord does naturally. This is why he would go back on TRT.
According to his thread since being on TRT:
- multiple trips to the ER with concerns for his life
- DVT
- iron deficiency
- potassium deficiency
- vitamin c deficiency (I started to remember my very first symptoms when starting my first EOD protocol back in 2017, aching teeth/gums and bad taste in mouth)
- vitamin d deficiency
- pushing past 500ng/dl made him want to sleep all day
- pushing past 400ng/dl gave him red itchy hands, legs and feet worsened by showers, fatigue, coughing, burning or weakness in your hands, feet, arms or legs, fullness or bloating in your left upper abdomen, elevated body temps (99.2), headaches and blurred vision all associated with Polycythemia vera like symptoms
Again, I don't get it. His natural levels are 100. He had problems over 400. I would think lifestyle optimizations may get him to 200-300 with far less risk. What am I missing?
- multiple trips to the ER with concerns for his life
- DVT
- iron deficiency
- potassium deficiency
- vitamin c deficiency (I started to remember my very first symptoms when starting my first EOD protocol back in 2017, aching teeth/gums and bad taste in mouth)
- vitamin d deficiency
- pushing past 500ng/dl made him want to sleep all day
- pushing past 400ng/dl gave him red itchy hands, legs and feet worsened by showers, fatigue, coughing, burning or weakness in your hands, feet, arms or legs, fullness or bloating in your left upper abdomen, elevated body temps (99.2), headaches and blurred vision all associated with Polycythemia vera like symptoms
Again, I don't get it. His natural levels are 100. He had problems over 400. I would think lifestyle optimizations may get him to 200-300 with far less risk. What am I missing?
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Systemlord
Member
That's why you need knowledge doctors, none of my endos knew what to do. It was Defy (Mike) that caught the iron deficiency.
You might be right about not needing levels over 400 ng/dL. I felt great on 7mg daily even though I had multiple mineral deficiencies, I think the very low daily dose spared minerals that were already low.
I'm not suffering, sure energy isn't great, muscles are getting softer and have some muscle pain in legs, but I'm functioning mental just fine.
Twice now I have experienced symptoms of excess red cells on TRT and off TRT supplementing iron and the common denominator is RBC @6.0.
I didn't have a DVT, it was abnormally low potassium cramping my leg muscles affecting blood flow. I had a similar but more intense experience when attempting 10mg daily, after 7 days I experienced severe leg stiffness for about an hour which partially blocked blow flow in my legs which I now realize was more than likely very low potassium.
I was able to avert a long drawn out experience by stopping that 10mg daily protocol. I had the same burning sensations in legs and feet that I did when in the ER. The edema was from a paralyzed gut from multiple mineral deficiencies.
My natural RBC was/is 5.2. I haven't been able to get the needle to budge, Total T will not increase, the klonopin (30 years) really did a number on me.
After all that's happened, TRT is worth it. I'll never give up!
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Amen!
DragonBits
Well-Known Member
RBC of 6.0 is only slightly high, I assume you don't smoke and they checked your blood oxygen levels every time you entered the hospital?
My potassium levels are often elevated, like 50% of the blood tests. I checked my Aldosterone and it's on the low normal side. But I tend to ignore it and doctors usually say let's see what it is next time.
But what is causing all these multiple mineral deficiencies? It's not normal to have multiple mineral deficiencies.
Systemlord
Member
I have never smoked and blood oxygen levels are always excellent. As for the multiple mineral deficiencies I imagine my diet could be part of the problem.
DragonBits
Well-Known Member
As I suspected.
But unless you have a very unusual restricted diet, then have you looked at "malabsorption syndrome"? There are a number of possible causes of malabsorption.
As in infection, inflammation, trauma, surgery, prolonged use of antibiotics, celiac disease, Crohn’s disease, chronic pancreatitis, or cystic fibrosis.
There are more causes, you can google them.
Systemlord
Member
Excellent question, pre-TRT my iron was 62 (59-170) and saturation was 14%, a transferrin saturation of less than 16% constitutes good evidence of iron deficiency. I'm willing to bet money when my Total T was higher I was iron deficient before my T decline in 2015 after I started tapering off klonopin, the low T allowed iron to recover and land in the low range.
I believe the withdrawal off klonopin was so stressful on my body that minerals were depleted from 10 months or sweating and hormonal imbalance. When I went on TRT I was still deficient in a lot of minerals, low in iron and vitamin D which my doctors never addressed.
The iron was in range and therefore normal to my doctors eyes.
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Only three days with iron supplement I fell libido getting better again, sleeping Also. I am getting everything back, maybe a lot of people get iron deficiency while on trt and they don’t know it maybe even blame decreased in libido to something else while iron/ferritin is the issue.
Systemlord
Member
Just about every protocol as I near 6 weeks I start getting everything working, feeling good, erections and then days later all benefits are gone. I clearly was crashing and didn't know why until now.
I feel better now than I ever did on TRT because iron is healthy, can only imagine how I will feel once back on TRT.
madman
Super Moderator
If anything exogenous testosterone use increases dietary iron absorption due to it's effects on hepcidin.
The only way one would end up with an iron deficiency on trt would be from donating blood too often (which is the most common reason for crashing ferritin), lack of adequate iron intake whether through diet/supplementation or due to underlying health or absorption issues.
I used to believe supplementing iron is good for females only as male don’t need it, do I need to supplement iron ? Under trt ? Is it needed ?
After 4 months on TRT my ferritin went from 400 to 19. Before trt it stayed steady at 400 for a year. No clue why. Docs don’t know. No blood donations either.
I have hemorrhoids that can bleed a lot but I had some removed before trt. No issues. In the past they would bottom out my hgb and ferritin but. It this time
I have hemorrhoids that can bleed a lot but I had some removed before trt. No issues. In the past they would bottom out my hgb and ferritin but. It this time
That's crazy. Have you tried taking 1000mg vitamin C with bioflavonoids and betaine HCL with each meal? They can increase your absorption of iron.
Systemlord
Member
That's extreme, talk about going from one end of the extreme to the other.
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